Peutz-Jeghers Syndrome & Juvenile Polyposis Syndrome News
These resources are especially for those interested in PJS & JPS - the diagnosed, their friends, families, and health professionals. Please share this with any and all. A list of Online Support Groups for people interested in inherited cancer syndromes is at bottom of this email.
Warmest healing wishes,
INFORMATION AND NEWS
* Peutz-Jeghers News blog by Stephanie Sugars –
* 2014 and 2015 – Peutz-Jeghers Syndrome Meet & Greets are being planned for both Boston and Houston. Please join the PJS and JPS Online Support Group to keep informed. If email volume is a problem you can go “nomail” and periodically check the archives for updates and invites.
* 2014 Storytelling event – I tell of PJS and its affect on my life with breast cancer and relationship with death
* 2014 Free online 40-minute radio show about PJS
• 2014 Juvenile Polyposis syndrome entry at GeneReviews