Pushing Limits Radio
Adrienne Lauby talks to Stephanie Sugars
about a community of people living with a rare genetic
disease, Peutz-Jeghers Syndrome. The e-group
Stephanie facilitates celebrates its ten year
anniversary this month.
These 250-300 people, who live with Peutz-Jeghers
Syndrome, face decades of dangerous medical
procedures and difficult reproductive questions.
They engage with each other from many countries,
ages and income levels. How do they handle the
news of a miracle cure, misinformation about medical
procedures, abortion & fertility topics, death among
their members and other potentially dangerous
Aired on Friday, April 30, 2010 at 94.1 fm,
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